Care Providers

STORM is a multicenter Learning Network working to efficiently improve how our state partners deliver care to patients with sickle cell disease. We strive to give providers access to current and accurate resources that they can use to educate both themselves, their patients, and their patients' families. Our overarching goal is to improve the quality of life and health outcomes for all Midwesterners with SCD. We will accomplish our goal and aims via the following activities:

  • Improve access to a continuum of high-quality, patient-centered care from knowledgeable providers
  • Implement and spread evidence-based protocols and evidence-based practices among providers
  • Monitor and increase the number of patients in the region receiving highly-effective disease-modifying therapies, such as hydroxyurea (HU)
  • Engage patients and stakeholders to improve care
  • Develop a Technical Assistance Center to increase the capacity of providers in the region to use data for continuous quality improvement
  • Create a Sickle Cell Data Repository that includes data on the regional SCD population and measures related to access, quality and outcomes
  • Reduce health disparities, thereby increasing health equity for patients with SCD

Publications

Shook LM, Farrell CB, Kalinyak KA, Nelson SC, Hardesty B, Saving K, Whitten-Shurney W, Panepinto J, Crosby LE, and Ware RE.(2016) Using Telementoring to Improve Sickle Cell Disease Care in the Midwest, Medical Education Online, Nov 24;21:33616. 27887664

Crosby LE, Joffe NE, Davis B, Quinn CT, Shook LM, Morgan D, Simmons K, and Kalinyak KA. (2016) Implementation of a Transcranial Doppler Ultrasonography Protocol for Young Children with Sickle Cell Anemia: From Research to Practice, American Journal of Preventive Medicine,51(1),S10-S16

Crosby, L. E., Shook, L. M., Ware, R. E. and Brinkman, W. B. (2015), Shared decision making for hydroxyurea treatment initiation in children with sickle cell anemia. Pediatric Blood & Cancer, 62: 184–185. doi: 10.1002/pbc.25124

Crosby LE, Simmons K, Kaiser P, et al. Using Quality Improvement Methods to Implement an Electronic Medical Record (EMR) Supported Individualized Home Pain Management Plan for Children with Sickle Cell Disease. Journal of Clinical Outcomes Management, 21(5):210-217

Nelson, S. C., Prasad, S. and Hackman, H. W. (2015), Training providers on issues of race and racism improve health care equity. Pediatric Blood & Cancer, 62: 915–917. doi: 10.1002/pbc.25448