STORM is a multicenter collaborative network working to efficiently improve how our state partners deliver care to patients with sickle cell disease. We strive to give providers access to current and accurate resources that they can use to educate both themselves, their patients, and their patients' families. Our overarching goal is to improve the quality of life and health outcomes for all Midwesterners with SCD. We will accomplish our goal and aims via the following activities:
Crosby LE, Joffe NE, Davis B, Quinn CT, Shook LM, Morgan D, Simmons K, and Kalinyak KA. (2016) Implementation of a Transcranial Doppler Ultrasonography Protocol for Young Children with Sickle Cell Anemia: From Research to Practice, American Journal of Preventive Medicine,51(1),S10-S16.
Crosby, L. E., Shook, L. M., Ware, R. E. and Brinkman, W. B. (2015), Shared decision making for hydroxyurea treatment initiation in children with sickle cell anemia. Pediatric Blood & Cancer, 62: 184–185. doi: 10.1002/pbc.25124
Crosby LE, Simmons K, Kaiser P, et al.(2014) Using Quality Improvement Methods to Implement an Electronic Medical Record (EMR) Supported Individualized Home Pain Management Plan for Children with Sickle Cell Disease. Journal of Clinical Outcomes Management, 21(5):210-217.
Nelson, S. C., Prasad, S. and Hackman, H. W. (2015), Training providers on issues of race and racism improve health care equity. Pediatric Blood & Cancer, 62: 915–917. doi: 10.1002/pbc.25448
Shook LM, Farrell CB, Kalinyak KA, Nelson SC, Hardesty B, Saving K, Whitten-Shurney W, Panepinto J, Crosby LE, and Ware RE.(2016) Using Telementoring to Improve Sickle Cell Disease Care in the Midwest, Medical Education Online, Nov 24;21:33616. 27887664