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Providers

STORM is a multicenter collaborative network working to efficiently improve how our state partners deliver care to patients with sickle cell disease. We strive to give providers access to current and accurate resources that they can use to educate both themselves, their patients, and their patients' families. Our overarching goal is to improve the quality of life and health outcomes for all Midwesterners with SCD. We will accomplish our goal and aims via the following activities:

  • Develop a network of providers who give care consistent with evidence-based guidelines.
  • Expand our innovative monthly telementoring program - STORM TeleECHO - to improve access to provider education using an evidence-based curriculum.
  • Increase the number of patients in the region with annual, documented transcranial Doppler ultrasounds, pneumococcal vaccinations, and receiving highly-effective disease-modifying therapies, such as hydroxyurea (HU).
  • Engage patients, families, and stakeholders to improve care across the region.
  • Expand the educational scope of a novel on line clinical decision support tool website for providers to include hydroxyurea, immunizations, TCD screening, and transition.
  • Create a shared measurement system and data repository that includes data on the regional SCD population and measures related to access, quality and outcomes.
  • Expand upon a clinical decision support website for healthcare providers to include resources and educational materials for both patients and providers.
  • Utilize a Hydroxyurea Shared Decision-Making Toolkit to facilitate patient-provider communication and increase hydroxyurea uptake.

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