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Meet our Team

The Cincinnati Comprehensive Sickle Cell Center at Cincinnati Children's Hospital Medical Center will coordinate the STORM Regional Sickle Cell Collaborative, which consists of well qualified partners from Indiana, Illinois, Michigan, Minnesota, North Dakota, Ohio, South Dakota and Wisconsin. Stakeholders in the STORM collaborative include pediatric and adult hematology providers, primary care providers, state newborn screening programs, state health departments, community-based organizations, advocacy groups and patients/ family members across the eight states.

Regional Coordinating Center

Lisa Shook

MA, MCHES, DHPE

Principal Investigator

Christina Bennett Farrell

MPH, CPM

Project Manager

Cami Mosley

Clinical Research Coordinator

Justin McAdams

SR SPEC-CLIN DTA MGT

RCC Consultants

Rae Blaylark

Patient/Family Engagement Consultant

Lori Crosby

PsyD

Behavioral Health Consultant

Russell Ware

MD, PhD

Hydroxyurea Consultant

Stephen Nelson

MD

Healthy Equity Expert Consultant

STORM Network Sites

State Project Director Lead Organization
Illinois (Peoria) Dr. Kay Saving University of Illinois College of Medicine at Peoria (UICOMP)/OSF Healthcare Children's Hospital of Illinois (CHOI)
Illinois (Chicago) Dr. Lewis Hsu University of Illinois at Chicago
Indiana Dr. Brandon Hardesty Indiana Hemophilia & Thrombosis Center
Michigan Dr. Eric Scott University of Michigan
Minnesota Dr. Stephanie Fritch Lilla Children's Minnesota
North Dakota Dr. Jordan Doss Sanford Roger Maris Cancer Center ‐ Fargo, ND
Ohio (Cincinnati) Dr. Charles Quinn Cincinnati Children's Hospital Medical Center
Ohio (Dayton) Dr. Mamle Anim Five Rivers Health Centers
South Dakota Dr. Brianna Murphy Sanford Children's Specialty Clinic ‐ Sioux Falls, SD
Wisconsin Dr. Allison Remiker Children''s Hospital of Wisconsin/Children's Wisconsin

About Us

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The PURPOSE of Sickle Treatment and Outcomes Research in the Midwest (STORM) is to bring together the hematology and primary care communities to collaborate with patients and families on quality improvement and provider education initiatives to improve access and delivery of care and outcomes for patients with sickle cell disease (SCD) in the Midwest.

Our APPROACH is a collaborative effort that implements quality improvement projects provider education efforts with pediatric and adult hematology practices to build a sustainable network to improve the outcomes and care for patients with sickle cell disease (SCD) in the Midwest. STORM participation is at the institution level or practice level, whereas each participating institution identifies a lead physician and additional clinical faculty and staff who work as members of local site-specific and topic-specific improvement teams.

THE MIDWEST REGION consists of eight states (IL, IN, Ml, MN, ND, OH, SD, & WI) with a total population of roughly 52 million. A recent study found that there are approximately 15,000 individuals living with SCD in the Midwest. It is estimated over 700,000 African Americans and 35,000 Hispanic individuals with sickle cell trait live in this region 1. The eight states listed above have joined together to design, implement, and evaluate projects that will effectively engage our regional state partners and patients in a collaborative network to improve outcomes for all individuals with SCD in the Midwest.